vlog

Object moved to here.

Medication Adherence—From Measurer to Measured | Humanities | JAMA Internal Medicine | vlog

vlog

[Skip to Navigation]
Sign In
Inside Story
April 1, 2024

Medication Adherence—From Measurer to Measured

Author Affiliations
  • 1Institute for Health Research, Kaiser Permanente Colorado, Aurora
JAMA Intern Med. 2024;184(6):599-600. doi:10.1001/jamainternmed.2024.0292

As a research fellow in the 1980s, I developed an adherence measure that used prescription refill records to calculate the proportion of medications that a patient filled over time.1 Many similar measures of refill adherence have since been validated for pharmacoepidemiology and health services research.2 In 2012, Medicare adopted 1 of these measures for several medication classes to assess the quality of outpatient care, and began offering payment incentives to encourage health plans to improve adherence.3

Almost 40 years later, I now take 2 medications that Medicare includes in its adherence metrics. Being a researcher to the core, I count my pills and track the timing of my refills. I can say that I have been approximately 98% adherent (with very narrow confidence intervals) over the years. Despite my consistent adherence, my health care system began to send me email reminders when my refills were due. I found these reminders to be unnecessary, and reflexively deleted them. In the past year, however, I have received increasingly urgent text messages and automated telephone calls from the pharmacy in my health care system with offers to help me fill my medications.

2 Comments for this article
EXPAND ALL
Rethinking Medication Adherence through Personal Narratives and Clinical Understanding
Ediriweera Desapriya, PhD | Department of Pediatrics, Faculty of Medicine, UBC, BC Children's Hospital
"Medication Adherence-From Measurer to Measured" by Dr. Steiner provides a thought-provoking reflection on the complexities and limitations of medication adherence measurement, drawing from the author's personal experiences as both a patient and a clinician.

Dr. Steiner's narrative offers valuable insights into the lived experience of medication adherence from the perspective of a patient who is also intimately familiar with adherence measurement methodologies. By sharing his own adherence challenges and reflections, he humanizes the discourse on medication adherence and highlights the disconnect between quantitative adherence measures and individual experiences.

Importantly, this article adeptly highlights the biases inherent in
adherence measurement, including the use of judgmental language and the oversimplification of complex behaviors. Dr. Steiner's acknowledgment of his own intentional nonadherence and the systemic biases embedded in adherence measurement algorithms underscores the need for clinicians and researchers to critically examine their assumptions and language when discussing adherence.

He emphasizes the importance of understanding the contextual factors that influence medication adherence, such as patient-provider communication, logistical challenges, and competing priorities. By contextualizing adherence behaviors within patients' lived experiences, clinicians can develop more tailored and empathetic approaches to supporting adherence.

The article raises important critiques of adherence metrics, particularly their tendency to prioritize numerical outcomes over patient-centered care and individual narratives. Steiner argues that reducing adherence to a performance metric oversimplifies the complexities of patient behavior and may inadvertently contribute to stigma and judgment within healthcare systems.

Appropriately, Dr. Steiner advocates for a more nuanced approach to medication adherence interventions that acknowledges the diversity of patient experiences and challenges. By listening to patients' stories and understanding the contextual factors shaping their adherence behaviors, clinicians and researchers can develop interventions that are more responsive to patients' needs and preferences.

Interestingly, this article implicitly raises ethical considerations surrounding medication adherence measurement and intervention. The author of the article rightly highlights the potential unintended consequences of adherence metrics, such as the exacerbation of systemic biases and the imposition of unnecessary interventions on patients. Clinicians and researchers must consider the ethical implications of adherence measurement and strive to uphold patient autonomy and dignity in their practice.

"Medication Adherence-From Measurer to Measured" offers a poignant reflection on the complexities of medication adherence measurement and the need for a more patient-centered approach to supporting adherence. Dr. Steiner's narrative underscores the importance of recognizing biases, understanding context, and prioritizing patients' experiences in adherence research and clinical practice.

Michael Tiu, Crystal Ma
CONFLICT OF INTEREST: None Reported
READ MORE
Important Essay!
David Karpf, MD | Stanford University School of Medicine
I fully agree with the richness/complexity of the story behind a simple term such as "non-adherence", as described by Dr. Steiner. However, a simple series of questions that i have used in virtually all of my patient visits since 1997 is fairly straightforward, and tends, in my experience, to get to the roots of most adherence issues.

The first question is "Are you having any problems or issues or difficulties with any of your prescribed medications?" This includes both medications prescribed both me, as a specialist, as well as others, such as their PCP or other specialists. />
If this question does not elicit any conversation, I follow-up with "Are you taking all of your prescribed medications as they are prescribed?". Occasionally this does not elicit any comments, but fairly often patients will then admit to some minor issues with dosing, such as skipping doses when traveling, or missing an AM dose that must be fasted when up late and eating, etc. And sometimes this will illicit severe noncompliance, either due to AEs or fear of AEs.

The basic way to accurately assess compliance with treatments, I think, is to TALK with & LISTEN to our patients, as opposed to staring at and entering data into a screen.
CONFLICT OF INTEREST: None Reported
READ MORE
×